A Disease of its Own Kind
They call it chronic spontaneous idiopathic cholinergic urticaria.
Chronic, meaning, you’ve got it for good, mate.
Spontaneous, meaning it can happen at any time.
Idiopathic, meaning without rhyme or reason.
Cholinergic, relating to nerve cells.
Urticaria, that’s the hives bit.
Put it together and what have you got? Bibbidi-Bobbidi-Boo. No, you do not have bibbidi-bobbidi-boo. You’ve got terrible hives that can happen any time, without a reason, forever. That’s what I’ve got. I recently read about a woman’s experience with this strange condition that essentially is your immune system going all batty, firing off an allergic reaction to things that shouldn’t cause allergic reactions. Things like cold, heat, vibrations, loud noises, looking at goldfish for too long… OK not that one, but all the others, yes. What I could relate to more than anything in this article wasn’t the hives itself, or the confusion of why she was getting them, or even the suddenness of its appearance, what I could really relate to more than any of that, was how trivial everyone else seemed to treat it. Not just that being a bit itchy was trivial, but that the whole thing was somehow funny, unlikely, unbelievable and completely misunderstood. No matter how many times she told people, and no matter how she explained how she felt, the closest anyone came to anything approaching understanding what she was going through was confusion and disbelief.
I’ve described the worst of my hives as some kind of strange electrical storm that took over my skin and was a combination of psoriasis, eczema, the worst sunburn you’ve ever had, with occasional bouts of being attacked by murder hornets. I would be lying if I said there weren’t moments I was brought to tears, panic, and sheer anger. There was a period of several months where I doubt I slept more than an hour at any time. Weirdly, I thank all the gods for the pandemic because just as the world came to a standstill, when were were told to stay inside, avoid other people and when work slowed to a crawl, that was exactly what I needed. When wearing clothing is painful, or you are embarrassed by just how much of your skin is falling off your forehead, or when your eyelashes are full of dead skin, or your arms are covered in claw marks like telltale signs of self-harm, the one thing you don’t want to do, is see other people. Other people can go to hell.
Labels: health